Day 11 - No News is Short News

Daily Goal: be comfy!

We are so happy with the progress Milo is making. Today the doctor told us his lung is fully inflated and they will be stopping the breath therapies, CPT, and returning his CPAP pressure to 5. They will just be keeping on eye on his lung (well an ear since they will not be planning more x-rays and just listen to hear if it sounds normal). Everything else is going how they would hope and he is almost ready to transition from an all IV diet to a partial milk diet after his contrast study on Monday.

Shelly got to hold him again for an hour today. They keep him so comfortable, all wrapped up in a cocoon whether he is being held by us or just chilling in his "nest." We were going to take a break to get some dinner but instead just decided to spend the rest of the evening in the hotel room relaxing (they had made chili dinner for everyone and had leftovers from the meal they had made yesterday) so we stayed in. With Milo so well cared for, we tend to feel a little ancillary at his bedside unless we can be holding him. Since he is all tucked in and we want him to have his rest, we hate to untuck him just to hold his hand for a bit. Perhaps tomorrow we will do that anyway for a bit.

We had a nice night in watching movies and relaxing and are headed in early tomorrow to see how his contrast study goes.

Little Hands